Successful home care reinstates a sense of self and quality of life
Richard is a fifty-four-year-oldgentleman, a car enthusiast,who suffered a brain stem haemorrhage in 2017. This has left him ‘locked-in’ – this means he is unable to move any part of his body (apart from his eyes), is unable to talk or swallow and requires full assistance with all his personal care needs.
He spent 18 months in a Brain Injury Rehabilitation unit. Although his physical care needs were being met, he was often left for long periods of time alone either in bed or his wheelchair in a private hospital type room. As a result, he became very sleepy and did not attempt any interaction with the staff who cared for him. The only time he showed any response to others was when his partner or family visited.
His partner was keen to have him home and Sonderwell Complex Care recruited a team of care workers who worked alongside the staff of the unit learning his requirements in order to get him home.
Richard requires 24-hour care. He receives nutrition and medications via his gastrostomy tube. He is doubly incontinent and has a urinary catheter in place. He requires oral suction to help him manage his secretions. He requires full help with moving and so there are regular double ups of carers during each day and night so he can be moved safely.
Things are looking up
From the moment Richard came home with a full Sonderwell Complex Care team in October 2018 he began to improve in both mind and spirit. His level of alertness gradually improved and he began to attempt communication by blinking his eyes. This led to the team creating a YES/NO board which he now uses to communicate his consent and preferences.
His care team take him out in his wheelchair to enjoy walks, he attends hydrotherapy sessions. Being at home has vastly improved his quality of life. He enjoys watching Formula One races, watching films with his family, having car magazines shown and read to him. His partner and his family have also had their quality of life improved – he is part of the family again.
What it means to family life
His partner said that “The staff are exceptionally caring and attentive. They are fully engaged with my partner’s care and genuinely concerned for his welfare. I am convinced he benefits from this. I would not consider any other provider. Everyone treats him as an individual.”
The team go above and beyond the call of duty to care for Richard and ensure he is looked after and not distressed.